Core information standard: Reports
2.4 Q5. Which of the following benefits would people who use services get from contributing to the information held in their health and care records? For example recording their needs, values and preferences or measurements they have taken such as blood pressure.
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xychart-beta
title "Agreement on Benefits of Care Data"
x-axis ["Improve communication", "Promote self-management", "Support joint decisions", "Improve efficiency", "Reduce burden", "Improve safety"]
y-axis "Percentage of Responses" 0 --> 100
bar "Strongly agree" [61, 48, 56, 66, 40, 52]
bar "Agree" [32, 36, 34, 26, 30, 32]
bar "Neither agree or disagree" [5, 13, 8, 6, 22, 13]
bar "Disagree" [1, 2, 1, 2, 6, 2]
bar "Strongly disagree" [1, 1, 1, 1, 2, 1]
| STRONGLY AGREE | AGREE | NEITHER AGREE OR DISAGREE | DISAGREE | STRONGLY DISAGREE | TOTAL | WEIGHTED AVERAGE | |
|---|---|---|---|---|---|---|---|
| Improve communication including the timeliness of information sharing e.g. sharing test results | 60.95% | 31.71% | 5.25% | 0.99% | 1.09% | 1,009 | 1.50 |
| 615 | 320 | 53 | 10 | 11 | |||
| Promote people managing their own care | 47.87% | 35.68% | 13.28% | 1.98% | 1.19% | 1,009 | 1.73 |
| 483 | 360 | 134 | 20 | 12 | |||
| Support making joint decisions with professionals about their care | 55.74% | 34.26% | 7.72% | 1.29% | 0.99% | 1,010 | 1.58 |
| 563 | 346 | 78 | 13 | 10 | |||
| Improve efficiency e.g. avoid repeating information | 66.14% | 25.54% | 5.54% | 1.78% | 0.99% | 1,010 | 1.46 |
| 668 | 258 | 56 | 18 | 10 | |||
| Reduce burden on professionals | 40.38% | 29.86% | 22.02% | 5.75% | 1.98% | 1,008 | 1.99 |
| 407 | 301 | 222 | 58 | 20 | |||
| Improve safety | 51.98% | 31.55% | 13.49% | 1.69% | 1.29% | 1,008 | 1.69 |
| 524 | 318 | 136 | 17 | 13 |
- A large majority of respondents agree that people who use services would benefit from contributing to the information held in their health and care records.
- Front line staff, people who use services and their carers, vendors and administrators were least convinced that people contributing to their records would reduce the burden on professionals.
- Social care, mental health and learning disability professionals and people who use services were most convinced that people contributing to their own record would benefit them positively and that it would support joint decision making. Whereas vendors were less convinced that people contributing to their record would encourage joint decision making.
- Allied health professionals and social care professionals were least convinced that people contributing to their record would improve safety, but nurses and pharmacists thought the opposite, that people's contribution would ensure safety.
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A number of themes emerged from the qualitative analysis:
Whole person view
- This will facilitate a more holistic view of the individual and how they perceive their situation, needs and wants. The person's voice will be heard. The focus will be on the person not the pathway.
- Some people did express the view that they didn't see how it would actually help them manage their own care.
Benefits realisation
- Significant concerns were raised that potential benefits would not be realised if the development and implementation of the core information standard was not done well. It is not just about the information but about changing the business model and providing adequate training.
Other potential benefits Several other potential benefits were identified including:
- Reverse the rise in treatment of those who have expressed the wish for no further treatment
- Reduction in prescribing errors
- Allow some care to be moved outside of the acute setting to the home e.g. routine out-patient appointments
- Use data for research and analysis to improve public health
Page last updated: 06 January 2026